No answers

Genetics came back negative for everything. The neurologist still does not know why Ava is like this and so we just have to keep moving forward without an answer.
In the meantime we continued to follow the diet and I would encourage any parent to start the diet early. I imagine it is so much easier. Ava doesn't know what pizza is so she won't miss it. I think the hardest part of the diet is the guilt you feel about not letting your child eat all the things you know is yummy. It's also not very nice to see their cheeks glistening with oil after a meal.
But the possibility of seizure control is too important to compromise for an ice cream sunday.
At first I would weigh out all of her food a week in advance but now I just wake up and weigh her breakfast which from Monday to Friday is something that looks and tastes like minigo yogurt. It has 7 g of oil, 6g of oatmeal, 13 g of cream and 12 g of mini go for a 4:1 ratio and 360 calories. She loves it. On weekends I make her an egg omelet that I would eat myself it looks so good.
For lunch she gets chicken breast with bacon green onion and tomato with mayo and a dash of lime juice. Or chicken and apples with cream and margarine. For beef meals I sprinkle a bit of beef bouillon, beef strips, sour cream and margarine and it tastes pretty good. I always mix everything together, it makes it easier that she gets the proper ratio. If she spits something out or it drops on her bib, I just scoop it up and put it back in her mouth.
Supper I usually make while I am making the family's meal. Here I try to make it as close to what we are having.
I go the easy way out with her bottles and use the ketocal. I find the small amounts of milk and cream difficult to weigh out and she stays in better ketosis with the ketocal. I might go back soon though because a milk bill of $200 a month is a bit pricey.
Ketosis is what happens when the body starts burning off fat for energy when there is no carbohydrate in the body. We test her ketones three times a week in the morning and evening. I used to test it five times a day while initiating the diet so that I knew exactly when she was in ketosis. Now I will when I change a meal or add one or we change her calories.
There are some things that will pull her out of ketosis even when we follow the diet. For example when she teethes, is sick, tires or just upset. Sometimes I notice that when her routine changes or she exerts herself too hard seizures will break through. I don't worry about those yet because they are out of my control.
There is a light at the end of this buttery tunnel, that maybe in two years we might be able to stop the diet but for now we are trucking along without too many bumps.