Alacrima and cerebral vision impairment

Finally, after a year of telling her neurologists and opthomologists that Ava has alacrima, she has been officially diagnosed with alacrima as a symptom. Quite frankly it was getting a bit tiring saying a lack of tears with emotional crying every time I mentioned it as a symptom because if I used the A-word the neuros would shut me down saying that it wasn't that. They argued that Ava would have to have a complete lack of tears and since her eyes were shiny and bright then she does not have it.
For the last time docs, listen to the parents. They care a hell of a lot more than anyone and will put in the time and research.
So we spent four hours in the opthomologist in Halifax and she was completely brilliant. I was ready to fight when we walked in because thats all I seem to be doing lately.
I thought I'd let her speak what she thought first and everything she said sounded great. She did all sorts of tests including the Schirmer testing that despite her bawling the whole five minutes (poor girl) only collected a minimal amount of tears or liquid most of which the doc said was the solution that numbed the eye that she put in.
She said without a doubt Ava has a form of alacrima.
Now it is in the file and I will talk with her neuro and genetisist to see what further searching will be done.
The optho also looked at my list of theories of what could tie alacrima and delay and seizures to a diagnosis. I was able to find seven even if four of them were definite no's there were some that were possibilities.
The thing that i've always said was that with delay and seizures there are over 30,000 possibilities that Ava hasn't been checked for and probably won't be. If you add alacrima the number of possibilities can be counted on two hands. So I say why not check them and if there is no connection...fine. We move on. If there is then we know how best to treat if there is a treatment.
I know that if it connected to hormone then there are things that can be done. I think those should be checked first.
Second part of the optho appointment revealed that Ava has Cerebral Vision Impairment. It means basically that her eyes are fine but the message between her brain and eyes is mixed up. She may only be able to see certain things or what she sees may be altered. She was set up with glasses (boy did she look cute...pics to come) and later this year she will be upgraded to bifocals. We hope this will help her with her fine motor.
She will also be tested for the brain/vision accuity to map out her neuron pathways to see just how strong that pathway is.
And one more therapy will be added to the list. CVI is basically a type of blindness and so we will be taught how to make the best of interacting and intervention with Ava.